
TOGETHER WE CAN DO GREAT THINGS
Join our volunteer team! Share your skills, interests, and availability, and we'll help match you with meaningful opportunities to support the DESSH community. No matter your experience or expertise, there's a place for you in our mission.
Know someone who would love to get involved? Please share this form and help us grow our impact together.
Stay In Touch
Sign up to receive occasional email updates from the DESSH Foundation about our programs, advocacy efforts, community activities, and foundation news. Our mailing list is for supporters who want to learn, stay engaged, and help raise awareness for DeSanto–Shinawi Syndrome. We value your interest and respect your inbox. Whether you’re connected to the community or simply want to follow our work, we’re glad to have you with us.

Follow Our
Work

Make New Connections

